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Amyloidosis Center Heidelberg

University Hospital Heidelberg

AL Amyloidosis ATTRv ATTRwt AA Amyloidosis 6 Rare Subtypes

Contact Information

Primary Contact

Ute Hegenbart

Speaker / MD

Activity level

  • Patients per year1500
  • New diagnoses per year500

Multidisciplinary team

  • HematologyOn-site
  • CardiologyOn-site
  • NephrologyOn-site
  • NeurologyOn-site
  • PathologyOn-site
Other specialists
GastroenterologyHepatologyPulmonologyPrimary CareRheumatologyGeneticistsGenetic counsellorsNuclear medicine specialistsCardiac imaging specialistsRadiologistsTransplant programme - heartTransplant programme - kidneyTransplant programme - liverPalliative carePsychology / counsellingSocial work

Diagnostic capabilities

  • EchocardiographyOn-site
  • Cardiac MRI (CMR)On-site
  • Radionuclide imagingOn-site
  • Histopathology (Congo red)On-site
  • Amyloid typingThrough network partners
  • Genetic testingOn-site
  • Fat aspiration / labial gland biopsyOn-site
  • Organ biopsiesOn-site
Partner laboratories

C. Röcken, University Kiel

Subtype expertise

  • ALYes
  • ATTRvYes
  • ATTRwtYes
  • AAYes
Rare subtypes
Localised amyloidosisGelsolin (AGel)Apolipoprotein A-I (AApoA1)Apolipoprotein A-IV (AApoAIV)Fibrinogen A alpha-chain (AFib)Beta 2 microglobulin (Aβ2M)

Treatment options

  • Chemotherapy (AL)Available on-site
  • TTR stabilizersAvailable on-site
  • RNA interferenceAvailable on-site
  • Antisense oligonucleotidesAvailable on-site
  • Stem cell transplantAvailable on-site
  • Heart transplantAvailable on-site
  • Kidney transplantAvailable on-site
  • Liver transplantAvailable on-site
Other therapeutic services

CAR T cell treatment

Patient support services

Services offered
Psychosocial supportSocial workGenetic counsellingPatient support groupsPalliative care

Networks & telemedicine

  • Telemedicine / virtual consultationYes
  • Part of a formal amyloidosis networkYes
  • Diagnostic services for other organisationsYes
Diagnostic services contact

Last confirmed: 27 March 2026

Listings are self-reported by each center and have not been independently verified by the International Society of Amyloidosis (ISA). Inclusion in this directory does not constitute certification, accreditation, or endorsement by ISA.