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Amyloidosis Expertise Center

University Medical Center Utrecht

AL Amyloidosis ATTRv ATTRwt AA Amyloidosis 2 Rare Subtypes

Contact Information

Primary Contact

Dr. Oerlemans

Head of the Cardiac Amyloidosis Clinic

Activity level

  • Patients per year600
  • New diagnoses per year100

Multidisciplinary team

  • HematologyOn-site
  • CardiologyOn-site
  • NephrologyOn-site
  • NeurologyOn-site
  • PathologyOn-site
Other specialists
GastroenterologyPulmonologyPrimary CareRheumatologyGeneticistsGenetic counsellorsNuclear medicine specialistsRadiologistsTransplant programme - heartAllied health professionals (NP, PA)Palliative carePsychology / counselling

Diagnostic capabilities

  • EchocardiographyOn-site
  • Cardiac MRI (CMR)On-site
  • Radionuclide imagingOn-site
  • Histopathology (Congo red)On-site
  • Amyloid typingOn-site
  • Genetic testingOn-site
  • Fat aspiration / labial gland biopsyOn-site
  • Organ biopsiesOn-site

Subtype expertise

  • ALYes
  • ATTRvYes
  • ATTRwtYes
  • AAYes
Rare subtypes
Localised amyloidosisGelsolin (AGel)
Referral pathways

from second line to our center, see for example: https://pubmed.ncbi.nlm.nih.gov/35919127/

Treatment options

  • Chemotherapy (AL)Available on-site
  • TTR stabilizersAvailable on-site
  • RNA interferenceAvailable on-site
  • Antisense oligonucleotidesAvailable on-site
  • Stem cell transplantAvailable on-site
  • Heart transplantAvailable on-site
  • Kidney transplantAvailable on-site
  • Liver transplantAvailable via formal referral

Patient support services

Services offered
Psychosocial supportGenetic counsellingNutritional guidance (dietitian)Patient support groupsPalliative care

Networks & telemedicine

  • Telemedicine / virtual consultationYes
  • Part of a formal amyloidosis networkYes
  • Diagnostic services for other organisationsYes
Network webpage
Diagnostic services contact

Last confirmed: 27 March 2026

Listings are self-reported by each center and have not been independently verified by the International Society of Amyloidosis (ISA). Inclusion in this directory does not constitute certification, accreditation, or endorsement by ISA.