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Amyloidosis Center Umeå

Norrland's University Hospital

ATTRv ATTRwt 1 Rare Subtype

Contact Information

Primary Contact

Jonas Wixner

MD/PhD, Head of Department

Activity level

  • Patients per year200
  • New diagnoses per year20

Multidisciplinary team

  • HematologyThrough formal referral
  • CardiologyOn-site
  • NephrologyOn-site
  • NeurologyThrough formal referral
  • PathologyThrough formal referral
Other specialists
GastroenterologyHepatologyGeneticistsGenetic counsellorsNuclear medicine specialistsAllied health professionals (NP, PA)Social workOther

Diagnostic capabilities

  • EchocardiographyThrough network partners
  • Cardiac MRI (CMR)Through network partners
  • Radionuclide imagingThrough network partners
  • Histopathology (Congo red)Through network partners
  • Amyloid typingThrough network partners
  • Genetic testingThrough network partners
  • Fat aspiration / labial gland biopsyOn-site
  • Organ biopsiesThrough network partners
Partner laboratories

Clinical Pathology, Uppsala University Hospital, Sweden

Subtype expertise

  • ALNo
  • ATTRvYes
  • ATTRwtYes
  • AANo
Rare subtypes
Gelsolin (AGel)

Treatment options

  • Chemotherapy (AL)Available via formal referral
  • TTR stabilizersAvailable on-site
  • RNA interferenceAvailable on-site
  • Antisense oligonucleotidesAvailable on-site
  • Stem cell transplantAvailable via formal referral
  • Heart transplantAvailable via formal referral
  • Kidney transplantAvailable via formal referral
  • Liver transplantAvailable via formal referral

Patient support services

Services offered
Psychosocial supportSocial workGenetic counsellingNutritional guidance (dietitian)Patient support groups
Other support services

Physiotherapy

Networks & telemedicine

  • Telemedicine / virtual consultationYes
  • Part of a formal amyloidosis networkYes
  • Diagnostic services for other organisationsYes
Network webpage
Listings are self-reported by each center and have not been independently verified by the International Society of Amyloidosis (ISA). Inclusion in this directory does not constitute certification, accreditation, or endorsement by ISA.