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Huntsman Cancer Institute at the University of Utah

Huntsman Cancer Institute

AL Amyloidosis ATTRv ATTRwt AA Amyloidosis 4 Rare Subtypes

Contact Information

Primary Contact

Sarah Nelsen

Program Coordinator

Activity level

  • Patients per year180
  • New diagnoses per year80

Multidisciplinary team

  • HematologyOn-site
  • CardiologyOn-site
  • NephrologyOn-site
  • NeurologyOn-site
  • PathologyOn-site
Other specialists
GastroenterologyHepatologyPulmonologyPrimary CareRheumatologyOrthopaedicsGeneticistsGenetic counsellorsNuclear medicine specialistsRadiologistsTransplant programme - heartTransplant programme - kidneyTransplant programme - liverAllied health professionals (NP, PA)Palliative carePsychology / counsellingSocial work

Diagnostic capabilities

  • EchocardiographyOn-site
  • Cardiac MRI (CMR)On-site
  • Radionuclide imagingOn-site
  • Histopathology (Congo red)On-site
  • Amyloid typingThrough network partners
  • Genetic testingOn-site
  • Fat aspiration / labial gland biopsyOn-site
  • Organ biopsiesOn-site
Partner laboratories

Mayo Clinic

Subtype expertise

  • ALYes
  • ATTRvYes
  • ATTRwtYes
  • AAYes
Rare subtypes
Localised amyloidosisFibrinogen A alpha-chain (AFib)Beta 2 microglobulin (Aβ2M)Other

Treatment options

  • Chemotherapy (AL)Available on-site
  • TTR stabilizersAvailable on-site
  • RNA interferenceAvailable on-site
  • Antisense oligonucleotidesAvailable on-site
  • Stem cell transplantAvailable on-site
  • Heart transplantAvailable on-site
  • Kidney transplantAvailable on-site
  • Liver transplantAvailable on-site

Patient support services

Services offered
Psychosocial supportSocial workGenetic counsellingNutritional guidance (dietitian)Specialty pharmacyPatient support groupsPalliative careFinancial or access counselling

Networks & telemedicine

  • Telemedicine / virtual consultationYes
  • Part of a formal amyloidosis networkYes
  • Diagnostic services for other organisationsYes
Network webpage
Diagnostic services contact
Listings are self-reported by each center and have not been independently verified by the International Society of Amyloidosis (ISA). Inclusion in this directory does not constitute certification, accreditation, or endorsement by ISA.