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AL Amyloidosis Unit

RIgshospitalet

AL Amyloidosis 1 Rare Subtype

Contact Information

Primary Contact

Anne Kærsgaard Mylin

Senior consultant, MD, PhD

Activity level

  • Patients per year120
  • New diagnoses per year35

Multidisciplinary team

  • HematologyOn-site
  • CardiologyOn-site
  • NephrologyOn-site
  • NeurologyOn-site
  • PathologyOn-site
Other specialists
GastroenterologyHepatologyPulmonologyRheumatologyOrthopaedicsGeneticistsNuclear medicine specialistsCardiac imaging specialistsRadiologistsTransplant programme - heartTransplant programme - kidneyTransplant programme - liverPalliative carePsychology / counsellingSocial work

Diagnostic capabilities

  • EchocardiographyOn-site
  • Cardiac MRI (CMR)On-site
  • Radionuclide imagingOn-site
  • Histopathology (Congo red)On-site
  • Amyloid typingThrough network partners
  • Genetic testingThrough network partners
  • Fat aspiration / labial gland biopsyOn-site
  • Organ biopsiesOn-site

Subtype expertise

  • ALYes
  • ATTRvNo
  • ATTRwtNo
  • AANo
Rare subtypes
Localised amyloidosis
Referral pathways

ATTR amyloidosis is managed in Department of Cardiology RIgshospitalet.
AA amyloidosis is managed in Department of Rheumatology Rigshospitalet.

Treatment options

  • Chemotherapy (AL)Available on-site
  • TTR stabilizersAvailable on-site
  • RNA interferenceNot available
  • Antisense oligonucleotidesNot available
  • Stem cell transplantAvailable on-site
  • Heart transplantAvailable on-site
  • Kidney transplantAvailable on-site
  • Liver transplantAvailable on-site

Patient support services

Services offered
Psychosocial supportSocial workNutritional guidance (dietitian)Specialty pharmacyPatient support groupsPalliative care

Networks & telemedicine

  • Telemedicine / virtual consultationNo
  • Part of a formal amyloidosis networkYes
  • Diagnostic services for other organisationsYes

Last confirmed: 30 April 2026

Listings are self-reported by each center and have not been independently verified by the International Society of Amyloidosis (ISA). Inclusion in this directory does not constitute certification, accreditation, or endorsement by ISA.