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University of Rochester Medical Center

Strong Memorial Hospital

AL Amyloidosis ATTRv ATTRwt 1 Rare Subtype

Contact Information

Primary Contact

Frank C. Passero Jr.

Hematology/Oncology, Associate Professor

Activity level

  • Patients per year357
  • New diagnoses per year63

Multidisciplinary team

  • HematologyOn-site
  • CardiologyOn-site
  • NephrologyOn-site
  • NeurologyOn-site
  • PathologyOn-site
Other specialists
GastroenterologyPulmonologyPrimary CareGeneticistsGenetic counsellorsNuclear medicine specialistsCardiac imaging specialistsRadiologistsTransplant programme - heartTransplant programme - kidneyTransplant programme - liverAllied health professionals (NP, PA)Palliative careSocial work

Diagnostic capabilities

  • EchocardiographyOn-site
  • Cardiac MRI (CMR)On-site
  • Radionuclide imagingOn-site
  • Histopathology (Congo red)On-site
  • Amyloid typingThrough network partners
  • Genetic testingThrough network partners
  • Fat aspiration / labial gland biopsyOn-site
  • Organ biopsiesOn-site
Partner laboratories

Amyloid Typing is sent out to Mayo Clinic Labs for mass spec

Subtype expertise

  • ALYes
  • ATTRvYes
  • ATTRwtYes
  • AANo
Rare subtypes
Localised amyloidosis

Treatment options

  • Chemotherapy (AL)Available on-site
  • TTR stabilizersAvailable on-site
  • RNA interferenceAvailable on-site
  • Antisense oligonucleotidesAvailable on-site
  • Stem cell transplantAvailable on-site
  • Heart transplantAvailable on-site
  • Kidney transplantAvailable on-site
  • Liver transplantAvailable on-site

Patient support services

Services offered
Social workGenetic counsellingNutritional guidance (dietitian)Patient support groupsPalliative care

Networks & telemedicine

  • Telemedicine / virtual consultationYes
  • Part of a formal amyloidosis networkNo
  • Diagnostic services for other organisationsNo

Last confirmed: 27 April 2026

Listings are self-reported by each center and have not been independently verified by the International Society of Amyloidosis (ISA). Inclusion in this directory does not constitute certification, accreditation, or endorsement by ISA.