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French National Reference Center for AL Amyloidosis and Other Diseases Caused by Monoclonal Immunoglobulin Deposition

Univeritary hospital

AL Amyloidosis ATTRv ATTRwt AA Amyloidosis 1 Rare Subtype

Contact Information

Primary Contact

Arnaud Jaccard

coordinator/Pr

Activity level

  • Patients per year200
  • New diagnoses per year40

Multidisciplinary team

  • HematologyOn-site
  • CardiologyOn-site
  • NephrologyOn-site
  • NeurologyOn-site
  • PathologyOn-site
Other specialists
GastroenterologyHepatologyPulmonologyPrimary CareRheumatologyOrthopaedicsGeneticistsGenetic counsellorsNuclear medicine specialistsCardiac imaging specialistsRadiologistsTransplant programme - kidneyAllied health professionals (NP, PA)Palliative carePsychology / counsellingSocial work

Diagnostic capabilities

  • EchocardiographyOn-site
  • Cardiac MRI (CMR)On-site
  • Radionuclide imagingOn-site
  • Histopathology (Congo red)On-site
  • Amyloid typingOn-site
  • Genetic testingOn-site
  • Fat aspiration / labial gland biopsyOn-site
  • Organ biopsiesOn-site
Partner laboratories

Pathology lab, CHU Poitiers
Unit for Genomics in Myeloma, Institut Universitaire du Cancer, Toulouse, France.

Subtype expertise

  • ALYes
  • ATTRvYes
  • ATTRwtYes
  • AAYes
Rare subtypes
Localised amyloidosis

Treatment options

  • Chemotherapy (AL)Available on-site
  • TTR stabilizersAvailable on-site
  • RNA interferenceAvailable on-site
  • Antisense oligonucleotidesAvailable on-site
  • Stem cell transplantAvailable on-site
  • Heart transplantAvailable via formal referral
  • Kidney transplantAvailable on-site
  • Liver transplantAvailable via formal referral
Other therapeutic services

Immunotherapy, bi-specifics or CART-cells

Patient support services

Services offered
Psychosocial supportSocial workGenetic counsellingNutritional guidance (dietitian)Specialty pharmacyPatient support groupsPalliative care

Networks & telemedicine

  • Telemedicine / virtual consultationYes
  • Part of a formal amyloidosis networkYes
  • Diagnostic services for other organisationsYes
Network webpage
Diagnostic services contact

Last confirmed: 23 April 2026

Listings are self-reported by each center and have not been independently verified by the International Society of Amyloidosis (ISA). Inclusion in this directory does not constitute certification, accreditation, or endorsement by ISA.