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LINHA DE CUIDADOS EM AMILOIDOSES REDE AMÉRICAS BARRA

COMPLEXO HOSPITALAR AMÉRICAS-SAMARITANO-VITÓRIA BARRA DA TIJUCA

AL Amyloidosis ATTRv ATTRwt

Contact Information

Primary Contact

MARCIA WADDINGTON CRUZ

COORDINATOR AND PRINCIPAL INVESTIGATOR

Activity level

  • Patients per year100
  • New diagnoses per year30

Multidisciplinary team

  • HematologyOn-site
  • CardiologyOn-site
  • NephrologyOn-site
  • NeurologyOn-site
  • PathologyThrough formal referral
Other specialists
GeneticistsGenetic counsellorsNuclear medicine specialistsCardiac imaging specialistsRadiologistsAllied health professionals (NP, PA)Other

Diagnostic capabilities

  • EchocardiographyOn-site
  • Cardiac MRI (CMR)On-site
  • Radionuclide imagingOn-site
  • Histopathology (Congo red)On-site
  • Amyloid typingThrough network partners
  • Genetic testingOn-site
  • Fat aspiration / labial gland biopsyOn-site
  • Organ biopsiesOn-site
Partner laboratories

CEPARM. UNIVERSITY HOSPITAL. FEDERAL UNIVERSITY OF RIO DE JANEIRO. BRAZIL

Subtype expertise

  • ALYes
  • ATTRvYes
  • ATTRwtYes
  • AANo
Referral pathways

NONE AT THE MOMENT

Treatment options

  • Chemotherapy (AL)Available on-site
  • TTR stabilizersAvailable on-site
  • RNA interferenceAvailable on-site
  • Antisense oligonucleotidesAvailable on-site
  • Stem cell transplantAvailable on-site
  • Heart transplantAvailable via formal referral
  • Kidney transplantAvailable via formal referral
  • Liver transplantAvailable via formal referral
Other therapeutic services

NEPHROLOGY ON SITE

Patient support services

Services offered
Genetic counsellingNutritional guidance (dietitian)Patient support groups
Other support services

NAVIGATOR NURSE

Networks & telemedicine

  • Telemedicine / virtual consultationNo
  • Part of a formal amyloidosis networkNo
  • Diagnostic services for other organisationsNo
Diagnostic services contact

Last confirmed: 31 March 2026

Listings are self-reported by each center and have not been independently verified by the International Society of Amyloidosis (ISA). Inclusion in this directory does not constitute certification, accreditation, or endorsement by ISA.